Who We Are
Haemophilia Foundation Australian Capital Territory Incorporated (HFACT) is a non-profit organisation representing people, and their families, affected by haemophilia, von Willebrand's disorder and other rare bleeding disorders. HFACT operates in the ACT and the surrounding region of Southern New South Wales.
HFACT started as a small support group in late 1983. At that time, about six families got together to share their experiences and thought it would be a good idea to continue to meet on a regular basis and to support each other.
After a few years it was decided to set up a more formal structure for the group, so a constitution was drawn up and steps were taken to become incorporated.
Registration as the Haemophilia Support Group of the ACT Incorporated, was granted on 31 October 1986. Recognition as a tax-deductible charitable organisation followed soon thereafter.
The group continued to operate at a low-key level for a number of years, providing some social and educational gatherings each year.
Following the discovery of viral contamination of blood products the group sought, and received, funding from the Federal and ACT Governments to enable it to support its members through those difficult times.
In June of 1993, we changed our (registered) name to Haemophilia Foundation Australian Capital Territory Incorporated (abbreviated: HFACT) and took up formal membership of Haemophilia Foundation Australia.
Since that time, HFACT has continued, not only to provide support to its members but also to lobby governments and hospitals for continuing improvement in products, services and haemophilia care.