World Haemophilia Day
Every April 17 World Haemophilia Day is recognised worldwide to increase awareness of haemophilia and other inherited bleeding disorders. This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.
World Haemophilia Day was started in 1989 by the World Federation of Hemophilia (WFH) which chose to bring the community together on April 17 in honour of WFH founder Frank Schnabel’s birthday.
HFACT WHD Family Picnic
** This event has been postponed for the foreseeable future **
Due to the current situation with the current COVID-19, or coronavirus, crisis the family picnic advertised below has been indefinitely postponed until it is safe to reschedule.
To celebrate the 30th anniversary of World Haemophilia Day, join us for a family picnic at 12.30 on Sunday the 19th of April at Nara Peace Park, Yarralumla.
“The theme of World Haemophilia Day in 2020 is “Get+involved”. Whether you are a patient, a family member or caregiver, a corporate partner, a volunteer, or a healthcare provider, we want to encourage you to help increase the awareness of inherited bleeding disorders and the need to make access to adequate care possible everywhere in the world.”
In the spirit of getting involved we will be hosting a range of activities, from outdoor games and sports to fishing, or simply sit back and catch up with your fellow community members.
Bring along a picnic lunch, something to sit on, and look out for the red tablecloths. Please RSVP to [email protected] or 0434 903 463 by April 13th.