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Privacy Policy

1. HFACT’S Commitment to Privacy

Haemophilia Foundation Australian Capital Territory Incorporated (HFACT) handles, collects and stores personal information in the course of carrying out its functions. We recognise the importance of privacy and the need for sensitive and appropriate collection of personal information. This document is HFACT’s Privacy Policy and explains how we collect and manage your personal information. HFACT endeavours to handle your personal information in accordance with our Privacy Policy and relevant privacy law.

2. What is Personal Information?

Personal information is any information or an opinion about an identified individual, or an individual who is reasonably identifiable. It can include a name, address, telephone number, email address, profession or occupation or photo.

3. What Sort of Personal Information Does HFACT Collect and Hold?

Depending on how you use our website and our services, HFACT may collect the following types of personal information: name; address; email addresses; telephone numbers; age or birthdate; profession or occupation; details of any bleeding disorder you have or your relationship to someone with a bleeding disorder; details of any products or services you have enquired about; photographs taken with your permission at HFACT events and related activities; and information you provide through our website either directly or indirectly.

We publish and archive the HFACT newsletter on our website. The newsletter includes articles of interest that will naturally mention members of HFACT, HFA and other third parties, and may also contain photographs. Wherever possible permission is sought from people before using photos of them in our newsletter. If a photograph of you appears on the HFACT website or in a newsletter and you wish it to be removed, please contact HFACT.

If we request information and you do not provide some or all of the personal information requested, we may not be able to offer you services or provide you with information about our events, programs and projects.

4. How Do We Collect Personal Information?

We may collect information from you in ways that include:

  • Through your access and use of our website. This includes details of your domain name, server address, date and time of your visit to our site, and the pages you browsed or downloaded within our site. This information is aggregated, and used for statistical or web development purposes only (see heading ‘Website Analytics’ below).
  • During conversations or exchanges between you and our representatives; or
  • When you complete an application, survey or make a donation.

5. For What Purposes Do We Collect, Hold, Use and Disclose Your Personal Information?

We collect personal information about you in order to carry out our functions and activities including advocacy, networking and support. We only collect information about you on an as-needs basis. This may include gathering personal information:

  • in order that you can apply for membership, subscriptions, subsidies or grants that HFACT or another entity offer from time to time;
  • to provide services including support or referral in relation to an individual’s bleeding disorder or related health need;
  • to provide you with communications requested by you, for example, regular newsletters;
  • to better understand the needs of HFACT’s constituency, the extent to which HFACT are meeting those needs and areas for improvement;
  • to process and respond to any complaint made by or relating to you; and
  • where the provision of information is authorised by law or necessary for a legal claim.
Direct information materials

We may send you direct information about activities, events or services that we consider may be of interest to you. These communications may be sent mail and email, in accordance with applicable marketing laws, such as the Spam Act 2003 (Cth). If you indicate a preference for a method of communication, we will endeavour to use that method whenever practical.

Importantly, at any time you may opt-out of receiving direct information communications from us by contacting us. We will then ensure that your name is removed from our mailing list.

We do not provide your personal information to other organisations for the purposes of direct marketing. Your personal information will not be shared, sold, rented or disclosed other than as described in this Privacy Policy.

6. To Whom May Your Information Be Disclosed?

We may need to disclose your personal information to others in order to carry out our functions. This may include

  • External support services: for example, health care professionals, lawyers, counsellors, funders, coordinators, volunteers, service providers, agencies and not-for-profits that provide support services;
  • Researchers, to carry out research studies into haemophilia diagnosis, treatment and cures.
  • Employees, contractors and service providers who perform services on our behalf;
  • Haemophilia Foundation of Australia (HFA) and state and territory foundations that are members of HFA.

In case of such disclosure, these third parties are required to keep the information confidential and are bound by this Privacy Policy.

Disclosure of personal information to anyone outside Australia

We will not disclose your identifiable personal information to any third party located outside Australia without your prior written consent. Note however, that disaggregated, de-identified data may be transmitted and stored overseas through hosting and other IT service providers.


This website uses Cookies, which gather data about your use of this website (such as pages visited, time on each page etc) but does not identify you personally but does identify your computer. You can set your browser to notify you when you receive a cookie and this will provide you with an opportunity to either accept or reject it in each instance.

Website Analytics

This website uses Google Analytics, a service developed by Google, Inc. that transmits and stores website traffic data to Google, where it is stored on servers located outside Australia. Google Analytics uses cookies to gather statistics about your use of the website (including your IP address). No personally identifying information (for example, names, email addresses or billing information) is collected.

We use reports provided by Google Analytics to help us understand website traffic and usage. This information helps us improve our website, including making it easier for you to find the information you are seeking. This information can also assist us better target our services to meet the needs of the bleeding disorder community.

By using this website, you consent to the processing of data about you by Google in the manner described in Google’s Privacy Policies. HFACT is not responsible for the collection and use of the disaggregated data by Google or other third party entities.

You can opt out of Google Analytics if you disable or refuse the cookie, disable JavaScript, or by downloading the “Google Analytics Opt-out Browser Add-on” available for free from Google.

7. Links to Other Websites

Our website may contain links to other websites operated by third parties. A link to a third party website does not constitute an endorsement of that content and we make no representations or warranties in relation to the privacy practices of any third party website.

8. Other Disclosure of Information

Except as set out in this Privacy Policy, we will not disclose your personal information unless you have previously informed us or have authorised us to do so, or if we must do so by law. If a court or government authority orders us to disclose any of your personal information, we will use our reasonable endeavours to notify you of this promptly, to give you an opportunity to exercise your legal rights unless order or law prohibits us from notifying you or when there is suspicion of fraud or criminal activity.

9. Security of Your Information

We take reasonable steps to ensure your personal information is protected from misuse and loss and from unauthorized access, modification or disclosure. We may hold your information in either electronic or hard copy form.

As our website is linked to the internet, and the internet is inherently insecure, we cannot provide any assurance regarding the security of transmission of information you communicate to us online. We also cannot guarantee that the information you supply will not be intercepted while being transmitted over the internet. Accordingly, any personal information or other information which you transmit to us online is transmitted at your own risk.

Direct Debit or Credit Card Information

HFACT does not collect, store or process direct debit or credit card details. HFACT accepts donations paid using a credit card through a secure third-party payment processor, such as PayPal Incorporated and Block Incorporated (owner of Square Pte Ltd).

10. How Can You Access and Correct Your Personal Information?

Upon your request we will provide you with access to any information we have collected from you and currently store, as far as is practicable. If you believe that personal information we hold about you is incorrect, incomplete or inaccurate, then you may request us to amend it. We will accede to such request unless it is our view that grounds for amendment do not exist, in which case we will add a note to the personal information stating that you disagree with it. You can contact us to access or discuss your personal information by emailing our Privacy Officer, details below.

11. How Long Do We Keep Information?

We will keep information for as long as it is necessary to service your membership/application or to continue to provide resources and services you have requested. If you cease to be a member or no longer require the services of HFACT, we will retain your information for as long as required to comply with relevant laws.

12. Further Information or Complaints

If you have any questions about this Privacy Policy, any concerns or a complaint regarding the treatment of your personal information, please contact our Privacy Officer via the details below. We endeavour to respond to complaints and queries in a timely and efficient manner. If you are dissatisfied with our response, you may refer the matter to the ACT Health Services Commissioner (see or the Australian Information (Privacy) Commissioner (see Your requests or complaints will be treated confidentially.

Please contact our Privacy Officer at:
Privacy Officer,
Haemophilia Foundation Australian Capital Territory Inc.,
PO Box 331,
Mawson ACT 2607

You can also contact us via our Contact Us page in the link above.

Changes to our Privacy Policy

We may change this Privacy Policy from time to time. Any updated versions of this privacy policy will be posted on our website. This Privacy Policy was last updated on 25 February 2024.

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