More Info

Where can I find more information?

For more information and frequently asked questions – click here – Haemophilia FAQ.

Download the HFA information booklets about haemophilia:

Haemophilia – [PDF, 2.5MB]

Living with mild haemophilia: a guide [PDF, 2.9MB]

Click here for other HFA publications on haemophilia.

REFERENCES

Australian Bleeding Disorders Registry (ABDR) Annual Report 2021-22. Canberra: National Blood Authority, 2023. [PDF, 1.7MB]

Australian Haemophilia Centre Directors’ Organisation. Guidelines for the management of haemophilia in Australia. Canberra: National Blood Authority, 2016.

Hermans C, Kulkarni R. Women with bleeding disorders. Haemophilia. 2018;24(Suppl. 6):29-36.

World Federation of Hemophilia. Guidelines for the management of hemophilia. 3rd edn. Montreal: WFH, 2020.

World Federation of Hemophilia. Hemophilia in Pictures. 2015.

Acknowledgements

Some information and illustrations in this resource were originally published by the World Federation of Hemophilia (WFH) and have been adapted with permission. The WFH is not responsible for any inaccuracies in content different from the content of the original English edition.

Reviewers

This resource was reviewed by

Bleeding disorder community representatives from HFA Haemophilia Consumer Review Group (individuals not named for privacy reasons).

Australian Haemophilia Centre Directors’ Organisation: Dr Janice Chamberlain, Dr Liane Khoo.
Australia and New Zealand Haemophilia Psychosocial Group: Kathryn Body, Jane Portnoy.
Australia and New Zealand Physiotherapy Haemophilia Group: Cameron Cramey, Alison Morris.
Australian Haemophilia Nurses’ Group: Jaime Chase, Alex Klever, Stephen Matthews, Robyn Shoemark.
Haemophilia Foundation Australia: Sharon Caris, Suzanne O’Callaghan.

We are also grateful to Clinical A/Prof Kristi Jones, Senior Staff Specialist in Clinical Genetics, The Children’s Hospital at Westmead, Sydney, and Melbourne Genomics for their suggestions and advice.