Items tagged 'General'

Today is World Haemophilia Day and we’re thrilled to share that HFACT has been selected as one of the Local…

Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis
Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others
Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life

The March edition of the HFACT newsletter “ACTIVATED” is now available. It has been posted to our post subscribers and…

What are the experiences of women and girls with bleeding disorders when they speak up for themselves in health care settings? Survey closing 8 April 2026
8 March is International Women's Day. Help us balance the scales - let's raise awareness about bleeding disorders testing and diagnosis for women and girls
28 February is Rare Disease Day – a worldwide event to raise awareness and generate change for people with rare diseases
Carly is 22 and talks about living with Glanzmann thrombasthenia as a young person and the value of support, living your life, and putting your health first.
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