Items tagged 'general'

Guide to living with VWD

29 October 2024

A guide to living well with von Willebrand disease (VWD) - from diagnosis to treatment, how it is passed on and special issues for females.

VWD fact sheet

29 October 2024

What is von Willebrand disease (VWD) - often called von Willebrand's? This fact sheet covers what causes it, symptoms, diagnosis and treatment.

Bleeding Disorders Awareness Month 2024

1 October 2024

Bleeding Disorders Awareness Month starts today! For all of October, individuals, families, Haemophilia Foundations and other organisations will come together to raise awareness about haemophilia, von Willebrand disease and other rare bleeding disorders around Australia.

Order promo items for BDAM

9 September 2024

October is Bleeding Disorders Awareness Month. Order some of our free promotional items and share them at your school, workplace or family/friend event.

World Hepatitis Day 2024

25 July 2024

Sunday, 28 July 2024 is World Hepatitis Day. This is a day when we come together worldwide to share the message, 'It’s time for action'.

World Hepatitis Day 2024

28 July 2024

World Hepatitis Day is marked globally on 28 July.

HFA Gene Therapy Snapshot Survey

29 May 2024

Gene therapy, HFA & Foundation news, Research

HFA would like to understand what our community members want from their haemophilia treatments and your perspectives on gene therapy in particular.

Gene therapy interview with Dr Michiel Coppens now available

23 May 2024

Gene therapy, HFA & Foundation news

On 14 May 2024 we were fortunate to have Dr Michiel Coppens join us at the HFA office for an interview about gene therapy. Watch it now.

Gene Therapy Interview with Dr Michiel Coppens

23 May 2024

In this interview chaired by Dr Stephanie P’ng and led by questions from the community, Dr Michiel Coppens explains what gene therapy is, how it works, and how it can be used to treat people with haemophilia.

Acquired haemophilia – Jenny’s story

11 April 2024

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.

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Haemophilia Foundation ACT

Created with Heartburst

Haemophilia Foundation Australian Capital Territory acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.