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Items tagged 'Growing up with a bleeding disorder'

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t…

What if you are passionate about playing Australian Rules Football, but have severe haemophilia? How can you keep doing something…

We asked some of our community members with bleeding disorders what they would tell their younger self. They reflected on what was most important to them when they were young and had some thoughtful and encouraging messages from what they have learned as they became adults.
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