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A national website by young people, for young people.
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HFACT 2025 Coastal Camp
HFACT held its annual camp on the 14-16th of November. Click below to read more.
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Supporting the bleeding disorders community in the Canberra region.

Haemophilia Foundation Australia Capital Territory
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Register for our e-news to stay connected with the National bleeding disorders community.

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2025 Coastal Camp

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Bleeding disorders family

December Newsletter Now Available

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red and blue neon lights - Starline for Freepik

Gene and emerging therapies fact sheets

Clotting factor therapy, bispecific antibody therapy, rebalancing therapies and gene therapy factsheets are now available...
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Haemophilia Treatment Centres

Treatment Centres

Getting Older information

Getting Older Hub

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Support Groups

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Find out more about bleeding disorders
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ACT Counsellor

HFACT provides a free counselling service for people with bleeding disorders and their carers in the Canberra region.

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What do you want to know about bleeding disorders? Pick a topic below to get started.

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Getting Older Hub

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Youth walking

Youth – Factored In

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Women with bleeding disorders

Find information for women and girls with bleeding disorders, including carrying the gene, haemophilia testing, VWD in females, self-advocacy and...
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Calendar

Feb
28

Rare Disease Day 2026

NATIONAL

Mar
1

Late summer BBQ

ACT

Mar
8

International Women’s Day 2026

NATIONAL

Looking for another foundation?

Click on the map to navigate to the site of each state's foundation.

Alternatively, click here to visit Haemophilia Foundation Australia.

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Personal stories
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Telling daughters: Zev’s story

'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia...
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Paul

Paul talks about his career

Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his...
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Jenny - acquired haemophilia

Acquired haemophilia – Jenny’s story

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully...
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Claire speaking at the 21st Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders

Hopes for the Future

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia,...
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